National population-based biobanks for genetic research
نویسندگان
چکیده
منابع مشابه
OECD guidelines on human biobanks and genetic research databases.
The OECD is a unique forum where the governments of 30 democracies work together to address the economic, social and environmental challenges of globalisation. The OECD is also at the forefront of efforts to understand and to help governments respond to new developments and concerns, such as corporate governance, the information economy and the challenges of an ageing population. The Organisati...
متن کاملEthics in population-based genetic research.
Population-based genetic research, including genetic epidemiology, shows tremendous potential to elucidate the role of genes as causal factors in complex and common human diseases. Like all research with human subjects, full realization of these benefits requires careful attention to its ethical conduct, establishing an appropriate balance between individual protections and the advancement of s...
متن کاملTelethon Network of Genetic Biobanks: a key service for diagnosis and research on rare diseases
Several examples have always illustrated how access to large numbers of biospecimens and associated data plays a pivotal role in the identification of disease genes and the development of pharmaceuticals. Hence, allowing researchers to access to significant numbers of quality samples and data, genetic biobanks are a powerful tool in basic, translational and clinical research into rare diseases....
متن کاملReturning Genetic Research Results: Considerations for Existing No-Return and Future Biobanks
A pressing issue for the genetic research enterprise—and an issue that has important implications for biobanks—is whether researchers should share, or “return,” the genetic research results with the individuals whose DNA they studied.1 With some exceptions, researchers typically have not returned genetic research results to the biospecimen donors.2 One reason for a no-return policy is that rese...
متن کاملBiobanks for Genomics and Genomics for Biobanks
Biobanks include biological samples and attached databases. Human biobanks occur in research, technological development and medical activities. Population genomics is highly dependent on the availability of large biobanks. Ethical issues must be considered: protecting the rights of those people whose samples or data are in biobanks (information, autonomy, confidentiality, protection of private ...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Genetics in Medicine
سال: 2007
ISSN: 1098-3600,1530-0366
DOI: 10.1097/gim.0b013e3180330039